Food intolerances - anyone have any experience?

I'm just wondering if anyone could share any similar experience.

I've just been tested for coeliac disease and proved negative which was a relief. Upshot is I ought to re-introduce gluten but remain wheat-free. Worth mentioning I do have Crohn's also.
Basically, wondering if anyone has specifically a wheat intolerance and how they manage - particularly in substitute foods and which foods to avoid completely that one might not expect. I intend to stick with the gluten/wheat free bread which apart from Dietary Specials products, is in the main, pretty dire and all of it is very expensive. Even making my own was frankly rubbish, despite it always working out well.

Of course I'll be continuing to check ingredients and whatnot - I don't expect anyone to do all the work for me! I was just wondering if anyone would care to help me on my road to discovering what I can and can't eat.
It's not much fun I can say that much.

Ta

[Scrubbs]

I did know of someone who had a wheat intolerance, but forgot about beer and lager, He started feeling better when he stopped drinking ......until he discovered he could drink cider........
I don't think I have an intolerance but as much as I love eating and baking it, I have a feeling it bread isn't doing my crohns any good, especially as I have restriction as well so evry now and again I go on a simple diet ie soup milk based food cheese and ensures etc. Anything very easy to digest, no fruit fibre or veg for about 4 days. It gives my bowels a rest

[peanut]

I also have crohn's and it's now got to a point where I have an intolerance to just about all foods in general. I'd love to find some diet that works, but I've not found one yet. Keep plugging away though.

Originally Posted by Scrubbs

I did know of someone who had a wheat intolerance, but forgot about beer and lager, He started feeling better when he stopped drinking ......until he discovered he could drink cider........
I don't think I have an intolerance but as much as I love eating and baking it, I have a feeling it bread isn't doing my crohns any good, especially as I have restriction as well so evry now and again I go on a simple diet ie soup milk based food cheese and ensures etc. Anything very easy to digest, no fruit fibre or veg for about 4 days. It gives my bowels a rest

Thanks.
Interesting. I can no longer drink beer/lager but cider is fine. Stands to reason.

I do the same every so often mate. Nice one.
Usually after I've been out for a meal/drink etc.
Some thin stew or home made soup. As you say, gives you chance to have a break.

---------- Post added at 19:59 ---------- Previous post was at 19:58 ----------

Originally Posted by peanutkp

I also have crohn's and it's now got to a point where I have an intolerance to just about all foods in general. I'd love to find some diet that works, but I've not found one yet. Keep plugging away though.

That's tough P.
I do seem to be going down that route myself though.
As I said, it's bloomin' miserable sometimes isn't it?
On holiday recently, nothing I wanted more than a big crusty Cornish Pasty.

[Scrubbs]

Are either of you on drugs for crohns? Could make a difference to your eating habits I guess. I am trying infliximab. Not fully convinced it's working tho

[peanut]

Originally Posted by kryogenik

That's tough P.
I do seem to be going down that route myself though.
As I said, it's bloomin' miserable sometimes isn't it?
On holiday recently, nothing I wanted more than a big crusty Cornish Pasty.

My trouble is I still eat what I know I shouldn't. It's part of that no appetite thing, you can only eat what you fancy which ain't much. I was told today it's now end of road with medication as nothing really worked, or the side effects were too drastic to carry on (I've tried everything from preds, 6mp to methotrexate etc). I also have a stricture as well which is now looking likely going to be a resection.

Everyone with Crohn's is different, but it's good to speak to others to get insights on how to cope etc.

[Scrubbs]

I don't have a "shouldn't" eat list I eat what I fancy and then cope with the results.
If it's the runs its codeine or loperamide. If it's really severe cramp/tummy pain I take tramadol and early bed, lots of still liquid.
The only thing that I had any faith in was a thing called "triple therapy" which was an experiment about 9 years ago (3 antibiotics, 1 for TB, 1 for leprosy and 1 standard ) Not available today I have been told as one of the aunty bettys doesn't exist any more

I have an intolerence to Pizza Chips Curry and Kebabs the side effects of my intolerence is a lard ass

[Scrubbs]

Originally Posted by David F

I have an intolerence to Pizza Chips Curry and Kebabs the side effects of my intolerence is a lard ass

I am still trying to grow an ass after my last visit to the "Crohns, rapid weight loss emporium" more commonly known as resection surgery

I just looked up crohns and I certainly do not envy you . Hope you can all find a way to be more comfortable

[peanut]

Originally Posted by Scrubbs

I don't have a "shouldn't" eat list I eat what I fancy and then cope with the results.
If it's the runs its codeine or loperamide. If it's really severe cramp/tummy pain I take tramadol and early bed, lots of still liquid.
The only thing that I had any faith in was a thing called "triple therapy" which was an experiment about 9 years ago (3 antibiotics, 1 for TB, 1 for leprosy and 1 standard ) Not available today I have been told as one of the aunty bettys doesn't exist any more

I used to take tramadols but I had a bad trip from them once, so I went off them quickly. Solpadols helped with pain but binded up something chronic, so ended up taking more and more and got into a bit of a loop. Codine has a simular effect which I can take in very small dosages only and not very often. Love the effects though of opiates but that's another thing.

I used to have quite a lot of 'safe' foods but after time they turn against you like all the rest.

The best relief so far for me is constant hot water bottles.

[Scrubbs]

Hot water bottles, good idea, do those "bean bag put in microwave" thingies work?

Oh, I find the hot water bottle system is definetly greatly assisted by clear alcohol, Bacardi Gin etc

[peanut]

Originally Posted by Scrubbs

Hot water bottles, good idea, do those "bean bag put in microwave" thingies work?

Oh, I find the hot water bottle system is definetly greatly assisted by clear alcohol, Bacardi Gin etc

The bean bags can work but I never can get them hot enough, and the heat never lasts that long (the more you use them the shorter the heat lasts) so water bottles seems to be best all round.

You're right about alcohol, I often take a swig of vodka to loosen the cramps, even at 8am or whenever the cramps get so bad. (Well that's my excuse anyway).

[strong] Alcohol is the baddie for me. I used to have a nip of Scotch to numb the pain but find now that this just aggravates it later on/next day. I'm currently on preds and Balsalazide (used for ulcerative colitis) and I generally find I've pretty much got it under control. Recently though, a slice of white bread and I look like I have a beach ball under my shirt..

Manuka Honey - God's best kept secret. If you haven't tried it, please, please do.
If you don't like honey (as I don't) try the capsules. UMF 10+ and above.

[Scrubbs]

Originally Posted by kryogenik

[strong] Alcohol is the baddie for me. I used to have a nip of Scotch to numb the pain

Ahh you see, not a clear one, I love brandy but I get the same thing, not good at all, but the most I get from Gin and It, is bad indigestion if I drink too much (I blame the tonic ) And I only drink in the evening at home.